Session 2 - Common Changes to Expect
Part 1 - What are possible changes in negotiating for care?
Changes in negotiating/advocating for care are related to the continuous need to find the supports you need to help care for the person you are caring for.
- Getting help from family
- Hiring help
- Finding and using community services
- Talking and working with nurses and doctors
- Getting the information you need
- Learning new skills
Examples from others who have experienced these changes:
“I had to spend considerable time with the many caregivers (who were good for the most part) in helping them get to know her needs, likes, dislikes, etc.”
“Caregiving is a task for which no-one can ever be prepared – the journey takes many turns – I finally [discovered] respite which is most required: Respite was my salvation.”
“Hired a friend to sit with my mother, so I could get out of home for a couple or three hours, once or twice a week, to work or to exercise or to spend time with myself. Also, Mom went to day program twice a week, set up by home care, homecare nurse is an awesome woman.”
“I’ve tried to learn everything I can about the diseases that affected my parents… I’ve attended support groups.”
Other Sessions in My Tools 4 Care