Session 2 - Common Changes to Expect
Part 1 - What are possible changes in negotiating for care?
Changes in negotiating or advocating for care are related to supporting your family member in a care facility.
- Talking and working with personal support workers, nurses, facility staff, and doctors
- Getting support from family and friends
- Learning to let others care for your family member, including cooking and food choices, bathing and exercise
Examples from others who have experienced these changes:
“It’s still—it’s a difficult transition, ‘cause you feel like you’ve lost control.”
“I really didn’t know where to go to find information. It seemed like a big void out there, and maybe I was too emotionally involved to comprehend or understand.”
“Communication within the medical community; it’s a power play.”
“It’s been a tough journey.”
“Everybody just disappeared. Friends disappeared.”
“You know he’s safe. That’s all you want: you want somebody to be safe and hopefully not distressed.”
Other Sessions in My Tools 4 Care - In Care